23 days later

My vision is going faster then expected or wanted so to the hospital I will go on Friday morning for another Lumbar Puncture. The doctor gave us his thoughts on a few things and I will try to relate them to you as I can remember them. First I off I have been cleared to come home "your gonna go blind no matter what you do" (okay I inferred the quote but that is pretty much what he was saying) I will need to go in for LP's every two weeks which can be done as an out patient. As for baby well he doesn't even think well make it to 30 weeks and I am here to tell you we will make it 35 weeks that's my goal and I will do what it takes to get there. That being said he is not an OBGYN. At this point we are not sure Diamox is the way to go considering the side effects and the fact it just didn't work last time. There are new theories out there that say my condition may have nothing to do with what I have or have not done but more to do with my veins. There is new surgery that can be performed but we won't get into that right now because surgery is at least 5 months away. I have been told to stay on bed rest for now to keep my pressure down and I am to do the same at home. I can go out for a few hours but I will need to lay down to recover. So we are now officially 23 days and two more LP's away from Rose and I coming home. I am expecting cake and ice cream!

changes

Rose has gone into crisis mode. For the past three nights she has either been going to bed at two in the morning or just plain getting up two or three times a night and wondering into my bedroom. This makes for a very, very difficult morning. Rose and her father have been fighting none stop since I went into the hospital. Rose has turned into a manipulative brat. She cries if she doesn't get her way or tries to bargain her way into something she thinks is better. She is trying to take control and I am in bed unable to step in and Liam is to tired to work on it. So this morning I got up with them and "tried" to help out. This house if falling apart and I can't do a damn thing to stop it. Rose and Liam are out of control and I am going to sit on them both. I have had enough and the buck stops here!!!! There are going to be some changes made...

Questions

We believe we are days away from the other shoe dropping and me going back into the hospital sooooo If I don't blog for while that is why.

The other topic on my mind is even if I can get home for the holidays what do I do then?

1. I have no car to take myself to the hospital
a. Baby check up
b. LP's

2. What do I do with Rose all day I can't be getting up every two minutes to entertain her nor should the dear child be forced to watch TV all day.

So I was wondering if you knew if Dulith Methodist Church had Holiday Care running over the holidays. Or if anyone had a church that could take her during the week for the time my parents are at work?

Or I may spontaneously get better and all of this will be for not!

You really don't have to answer any of these questions I'm feeling whinny and not sure of myself. I can't do a whole lot so my self esteem is none existent. Plus I have all this time to worry.

The trenches take 2

Hey there here is some info on bedrest and the hell it is no its just a little info. I will be posting the Halloween Party photos soon. Not that anyone reading the below can do anything but hey I've tried.

Bed Resting Wife
Dear Readers, after thoroughly investigating this question I can tell you that while there are a number of things not to say to your bed resting wife or partner, the following seem particularly dangerous:

1. I wish I could stay in bed all day.

2. Why don't you sort out our finances? After all, you've got nothing better to do.

3. To be honest, I'm not all that interested in what happened on Ricki/A Baby Story/Extreme Homes today.

4. Are you putting on too much weight?

5. Sorry I didn't pick up dinner, I was too tired. Why don't we just eat cereal?

6. Oh, wait, was I supposed to organize something special for this weekend?

7. My mother and father are coming tonight.

8. How many weeks have you been on bed rest? (and then underestimate the number)

9. I can't wait until you're up and about again and can do your fair share of the chores.

10. Why did we decide to have kids in the first place?
You have been warned.


6 Most Important Things to Have by the Bed or Sofa

1. Stamps. Okay, so you can't get up to put letters and bills in the mail box, but you feel your task is so much more complete if the envelopes are sealed, the return address is written, and there's a nice shiny stamp with a birdie at the top.

2. Indigestion tablets. Never understood those ads centering people with contorted faces. So you have a bit of indigestion - bit deal! That was until I went on bed rest and my meals declined to enter my stomach in an appropriately speedy fashion.

3. Computer. Internet Explorer, or similar. Google, or similar. Yahoo groups, or similar.

4. TV remote. Leaving said remote out of my reach is grounds for divorce. Ditto for telephone.

5. Two pitchers of water plus one 12 oz glass (6 full glasses before lunch time, 6 before bed to keep blood thin and baby's fluid levels high).

6. Fully-stocked cookie tin. 'Nuff said.


Things to Do for a Woman on Bed Rest
So maybe you have a neigbor on bed rest right now, a colleague, a relative. You're busy, you have your own problems. But take a moment to think if you can manage any of the following - I guarantee they'll be much appreciated...

1. Make an extra couple of portions of whatever you're cooking and offer to take them over and slip them in the freezer. Your bed resting friend is almost certainly fed up to the back teeth of hamburger helper (or whatever it is the exhausted husband is managing to produce these days). And if you're baking cookies, take some over while they're still warm.

2. If you're going to the post office, stop by to ask if you can purchase stamps or drop off packages for the bed rester.

3. If you're near a flower stall, buy a nice bunch, take them over, and make sure you arrange them in a vase by her sofa or bed before you leave (don't expect her to do it! Remember, she can't get up to fetch the vase, let alone carry it through the house. But she'll love to have something pretty and living to look at it in her room).

4. If you have a spare ten minutes, call to ask if you can fold some laundry/take out the trash/feed the cat/pick up some milk. You don't have to offer to clean the house, but taking care of even one chore will make a huge difference to how she feels about her environment.

5. If you have a spare half hour, call and ask if she'd like some company. If she says she's napping, don't be offended. If she says she'd love to see you, bring a magazine and something yummy to eat with you. And then, whatever else you do, do NOT tell her you know how she feels (unless you've been on bed rest) and do NOT tell her she should be enjoying herself. Do NOT tell her scare stories about other women's disastrous pregnanices, but do NOT tell her she has nothing to worry about. Listen sympathetically (she doesn't hear herself speak much these days) and then tell her the funny story about the guy at work who.....
Whatever you do, don't forget that bed resting woman!

5 Most Important Things I Learned About Bed Rest

1. Most people hear 'bed rest' and think it sounds quite jolly. Ah yes, I could do with a rest too, they remark sagely. As a bed resting woman, it is your solemn duty to explain the truth (ie rant on about pressure sores, wasted muscles, shortness of breath, need for physical therapy, depression, anxiety, loss of wages, stress on family, stress on older children, etc. etc. No-one should leave your company thinking that bed rest is any kind of a summer picnic).

2. It is very, very hard indeed to go from leading an ordinary life one moment to a completely sedentary one the next. It is very, very hard to be unable to fix yourself a drink/a bowl of cereal/a four-course meal appropriate to your condition as a very hungry, very pregnant woman.

3. Bed Rest affects 750,000 women a year. That's three-quarters-of-a-million women out there, lying on their left sides, day after day after day. Who knew?

4. Few women on bed rest get physical rehabilitation when they're done. Most women go straight into motherhood -- which is no summer picnic either. And many go into motherhood after the extra trauma of surgery (ie, a C-section), which makes regaining normal movement and conditioning even more difficult.

5. Every woman I've ever spoken to has said, 'I would have done anything to help my child.' Much respect to all the bed resters out there.

Strawberry pickin

Our recent weekend (before the whole Emergency Room fiasco) involved a wonderful strawberry farm near Handorf. A gallon and a half of berries for $20 = really good smoothies!

i got nothin

Just to make you laugh!

___________________________________

Nothing new to report. Still in bed, still watching TV!

Isabell is at my feet. I need a shower. Okay I got nothin!

1:39 pm Friday afternoon

only the lonely

Day 2

sleep, watch tv, sleep, watch tv, have insomnia from to much sleep!

You! Email me, me lonely!

Tails from the trenches!

I am not sure what to write. Its only 24 hours since the LP and my vision has started to go. I have an appointment the 7th of November and I should get to know what is going to happen with the next 6 months. Right now I am going through the internet to see how other women deal with Bed rest and children. I am going to have to start a plan for the house and the family. I fear I am in for a long haul and most likely a preemie baby. Liam is tired and out of sorts Rose is enjoying the Mcdonalds for Breakfast, and Dinner plus a tux order for lunch. I have contacted her school to get help with making sure Rose is handling all this okay. I will most likely be in and out of the hospital and she may feel left out. Laim's school sent flowers and a card wich was great! I will be working on not feeling a ton of guilt and not stressing the baby out. So please send emails and blog with me so I don't feel so alone!

Whatever you ask for in Prayer with faith you will receive. Matthew 21:22

Oh the saga

I'm back the good news baby Bosley is fine and loves to suck his/her thumb doing it several times through out the ultra sound. The biggest difference is Senior Pickle has apparently learned to dance (lets just say when the ultra sound started all we saw was the top of a tiny head that was spinning in place, pan down and he/she is running in place (I nearly peed my self with laughter). This baby is a never stops moving and is always doing something funny!

The bad news it is in fact Psuedo Tumor Cerebri and my pressure was high again. The LP went fine. The night that followed was hell. My back began shooting pains around my back and down my legs. My blood pressure dropped and I began sweating and was unable to breath. I was give oxygen and medicine to stop the pain. This pain they believe was caused when a nerve was hit during the LP. It should wear off in a few days. The big fear was that all the cramping and pain may have caused a miscarriage (which we were told was a possiblilty along with blindness if the LP wasn't given).

Doctors came and went all day large hoards of them. Finally I declared I was leaving. After much thought they decided that yah there was nothing they could do for me. Since they aren't sure what can be done for be but to wait until the baby is big and strong enough to deliver and then I go into surgery to have the shunt placed again. Yet again shortly after the birth of my child I will go into the hospital and miss those first few precious days. Diamox maybe prescribed again but I have had bad luck with that medication so it may be LP's every few day/months? Right now they don't know and I am not pushing my luck so I am heading into prescribed bed rest and my poor family will have to learn to work smoother when I can be up out of bed.

Please pray for the Bosley we are in for a long few months! Yes we are still planning to come home but I may be at the mercy of my dear sweet mother. Because more then likely I will be still on bed rest. If you want to learn more about my condition click on the words Psuedo Tumor Cerebri here or above

yet more hospital insights...

Hi There!

Spousal unit here again.

After 17 hours and 2 hospitals, Morgan finally was given a lumbar puncture to relieve the pressure.

yes, it is the same disease that gave her the shunt.

And yes, the shunt in question appears to no longer be functioning as advertised.

And since Morgan is pregnant, most of the usual treatments can't happen.

So, at the moment it looks like she is looking at regular spinal taps to relieve the pressure for the next 6 months until the baby arrives, and then they will bring her back in for a new shunt.

I will say this though, while the (in)effeciencies in the hospital systems are very similar down here, they seem to be far more polite about the whole thing.

Anywho, after a very long day (it's now 2:30 am and we started at 7:30 yesterday morning) I am headed for sleep.

Morgan is still in the hospital overnight while they watch her. She will hopefully be back home tomorrow afternoon.

That's all the news that's fit to print...

G'night!

yet more illness

Hello avid readers!

This post is being brought to you by the spousal unit.

Morgan has been very ill the past few evenings, and tonight is having a very tough time of it.

Based on her current symptoms, we are worried that it may be her Pseudotumor Cerebrae acting up again.

We are headed off to the hospital first thing tomorrow to check it all out.

Hopefully we can get it in hand while Rose is at school.

Here's hoping that we're wrong and it's just a 2 day migraine...

-Liam

Isn't it ironic...

I·ron·ic (-rnk) also i·ron·i·cal (-rn-kl)
adj.
1. Characterized by or constituting irony.
2. Given to the use of irony. See Synonyms at sarcastic.
3. Poignantly contrary to what was expected or intended: madness, an ironic fate for such a clear thinker.

Usage Note: The words ironic, irony, and ironically are sometimes used of events and circumstances that might better be described as simply "coincidental" or "improbable," in that they suggest no particular lessons about human vanity or folly. Thus 78 percent of the Usage Panel rejects the use of ironically in the sentence In 1969 Susie moved from Ithaca to California where she met her husband-to-be, who, ironically, also came from upstate New York. Some Panelists noted that this particular usage might be acceptable if Susie had in fact moved to California in order to find a husband, in which case the story could be taken as exemplifying the folly of supposing that we can know what fate has in store for us.

Okay in my family the song Ironic by Alanis Morissette has set off many a heated debate. Mostly because I believe most of what she is singing is not ironic but just a string of bad luck or pure coincidence. If you read the above instance of irony witch I agree completely with you will see what I mean. That being said. I believe I have had an ironic evening. This whole pregnancy I have been very sick to my stomach but not enough to actually puke despite spending nearly every night worried that I would. Well last night my very last night in this the first trimester at 11:30pm I puked so hard I broke the blood vessels around my eyes and mouth. Can we say Ironic that the very last day of what is suppose to be the difficult stage, one half hour before "relief" I throw up! So here's to the next 6 months!

Ironic

An old man turned ninety-eight

He won the lottery and died the next day

Its a black fly in your chardonnay

Its a death row pardon two minutes too late

isn't it ironic... Don't you think?

Chorus:Its like rain on your wedding day

Its a free ride when you've already paid

Its the good advice that you just didn't take

Who would've thought... it figures

Mr. play it safe was afraid to fly

He packed his suitcase and kissed his kids goodbye

He waited his whole damn life to take that flight

And as the plane crashed down he thought

Well isn't this nice...And isn't it ironic... Don't you think?

Repeat chorusWell life has a funny way of sneaking up on you

When you think everythings okayeverythinghings going right

And life has a funny way of helping you out when

You teverythinghings gone wrong and everything blows up

In your face

A traffic jam when youre already late

A no-smoking sign on your cigarette break

Its like ten thousand spoons when all you need is a knife

Its meeting the man of my dreams

And then meeting his beautiful wife

And isnt it ironic... dont you think? A little too ironic... and yeah I really do think...

Repeat chorus

Life has a funny way of sneaking up on you

Life has a funny, funny way of helping you out

Helping you out

The Phantom of the.....

Plus

___________________________________________________________________

Liam: Sitting at the piano playing "Jessie Freemans Daughter" by Jodi Weibel
----
Rose: Is sitting on the floor "daddy play phantom of the Oprah"

----

Me: Don't think I know that one?

What would God do?

He would decide it was time for some good old fashioned bonding and take on a mammoth project to do with his child. God and Jesus saved the world we just tried to paint together. I believe we had the more difficult task. But as you can see we made it through with little to no injuries.

We went to the store and she picked out the paint
Yes I even let her paint! She did a good job!
Can you tell what her favorite color is?

Confessions of an Evil Mother

Dear Diary,

Well that's at least how this blog is turning out. Tonight I went to bed and started thinking. Where has my heart gone? Why do I feel the way I do? I am speaking of Motherhood. I am laying here thinking why did I get myself into this in the first place. I love my daughter but lately I don't like her. She is arrogant, rude, and obnoxious (she is only 4). I love her more then life its self but tonight I want to get on a train and not come home. So now I am thinking what am I going to do with another one? Do I really want to get up every two hours to feed a child that will in the end not like a thing I cook? Will I be able to handle two when I can barely handle one? Why do I feel so lost? At night I worry. I worry that I am a horrible person for wanting to leave all this behind and be child myself again. I want to be the one bouncing around happy as a lark demanding what I believe I deserve instead of being the one avoiding getting hit by a flying foot or hearing the incessant voice that never ends. Where did I go wrong why am I not loving this? Did someone forget to give me the mommy gene? I seem to have lost my humanity. If you find it, if you could please return it to me post hast I would greatly appreciate it.

Pure Evil!

Please make the nasty girl go away. Rose has turned into the green eyed monster. She is so jealous of the cat she could spit. You heard me right she is jealous of Dugain. "You love her more" "She's looking at me" "stop holding her". Does this sound a bit like what's to come? And that's only the cat. She now wakes up in the middle of the night demanding we rub her feet. She stands at the cupboard and says "I want oatmeal, give me oatmeal". Not only is she evil but she cries all the time! Nothing makes her happy, everything throws her off. I don't even want to pick her up from school because the second she gets into the car she begins to complain. She never has fun anywhere even if taken to the zoo. Moments after getting in the car she is crying because we didn't buy her anything and we never do nice things for her. She even gets upset if Liam asks me what I want for dinner and not her "You always talk to her and not me". My guess is that a little bit of this has to do with the impending birth of her sibling and tad do with the age and a lot to do with being possessed by the devil himself.

boogie nights

Repeat performance was given! I believe this fetus is possessed! I have never seen a baby move like this child does.

The hospital crawl.

Today we had one of what will be two days of exploring the hospital system of South Australia. We went to the public hospital to see what it was like. I gave all the info and they put baby and I in the high risk department. They then checked for a heartbeat and checked and checked and checked no heart beat. My heart sunk. So they wheeled in an ultra sound machine. There in the gray was a very active and silly little baby. When I say the baby was movin that is an understatement it looked like he had just had 5 cups of coffee and Saturday Night Fever just came on. SO baby is okay and apparently having a grand old time. So tomorrow Rose and I are going to check out the private doctors and see what they are like. Perhaps baby squishy will give a repeat performance.

Ps, anytime we say he (describing the baby) Rose says you mean he or she.

Thanksgiving

Coming to a Country near you!

Yes you heard me right.

The Bosleys are landing in Pittsburgh, PA

Nov. 23 at 10:30 pm

believe it or not its been a year since we have stepped foot on US soil.